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This study investigated how both caregiver and patient factors predict different aspects of burden in colorectal cancer caregivers.
Understanding burden in caregivers of colorectal cancer survivors: what role do patient and caregiver factors play? (Follow this link if you have an Athens password). Alternatively contact the UHSM Academy Library for a copy of the article or call 0161 291 5778)
English policy and practice guidance recommends local authorities offer personal budgets to all adults eligible for social care support using transparent and equitable allocation systems which maximise choice and control for users. This includes family and other unpaid carers as carers in England are entitled to their own personal budget. The Care Act 2014 strengthens carers’ rights and places duties on authorities to assess and meet carers eligible support needs. However, little is known about how authorities assess and allocate resources to carers. This article explores this information gap drawing on data from a survey of English local authorities in two regions completed by carers lead officers and complemented by follow-up telephone interviews with a sub-sample of these officers.
The Academy Library does not currently subscribe to the journal that this article appears in, however we can most likely request it from another library. Please contact the UHSM Academy Library for more detail or call 0161 291 5778.
Carers Week activities the length and breadth of Scotland are raising awareness of the work of unpaid carers and bringing to life the real issues they face.
Access the paper by clicking here Treating Scotland’s carers fairly is the hallmark of a just society
For Carers Week, legal trainer Belinda Schwehr answers some of practitioners’ key questions about carers’ rights under the Care Act 2014.
Access the paper by clicking here Your questions answered about assessing carers under the Care Act
Carers Week seems like a good opportunity to consider the growing number of employees who have responsibility for caring for an elderly relative. As the population ages and people are living longer, but not necessarily in good health, those who are working in their 40s, 50s and 60s are increasingly finding that they are assuming care responsibility for an elderly relative, usually a parent. A 2015 report by Eurofound on work and caring across the EU points out that 8 per cent of men and 9 per cent of women aged 18-64 and in employment, care for an elderly or disabled relative at least once or twice a week. Among workers aged 50-64, the proportion rises to 18 per cent of men and 22 per cent of women. This can place individuals under considerable strain, as they struggle to balance their job with the care needs of their relatives and, in some cases, the care of young children too (the so-called sandwich generation).
Access the paper by clicking here Who cares for working carers?
The clinical and social epidemiology of living with a life-threatening or life-limiting illness, frail ageing, long-term caregiving, and grief and bereavement is well documented in the palliative care, psycho-oncology and psychiatric literature but this investigation asks what interest exists from the mainstream public health sector in these health and illness experiences. This paper reports a content analysis of 7 key British public health journals, 14 major public health textbooks and 3 public health websites employing key word and synonym searches to assess the size and quality of interest in populations related to ageing, dying, caregiving, and grief and bereavement. Compared with other public health issues, such as obesity and tobacco use, for examples, interest in the social experience and epidemiology of end-of-life experiences is extremely low. Reasons for this lack of interest are explored.
The Academy Library does not currently subscribe to the journal that this article appears in, however we can most likely request it from another library. Please contact the UHSM Academy Library for more detail or call 0161 291 5778
The purpose of our paper was to explore primary caregivers’ experience of the way public mental health nurses and other mental health clinicians responded to them as primary carers of older adults with mental illness. As populations age, the prevalence of mental illness in older adults will increase and the burden of care placed on family carers will intensify. While family carers are essential to the well-being and quality of life of older adults with mental illness, they frequently experience marginalisation from clinicians. An interpretative phenomenological analysis approach was used to inform data collection and analysis. Although some primary carers had favourable experiences with clinicians, most were dissatisfied and this, in turn, clouded their overall experience of caring. Our findings have implications for the provision of education, ongoing support for, and building the cultural competence of, clinicians about working with carers. They also highlight the need for a change in organisational and practice culture to encompass mutual respect and partnership with carers within the context of the providing person-centred care for carers and older adults with mental illness.
Carers of older adults’ satisfaction with public mental health service clinicians: a qualitative study. (Journal of clinical nursing, 25(11-12) p.1634-1643) (Follow this link if you have an Athens password). Alternatively contact the UHSM Academy Library for a copy of the article or call 0161 291 5778)
Supporting informal caregivers of persons with dementia is considered to be an effective strategy for improving the well-being of caregivers and care recipients and for delaying nursing home placement. This systematic review aims to investigate the effectiveness of different types of respite care in supporting informal caregivers of persons with dementia.
Unlike in previous reviews, we were able to draw some conclusions about the effectiveness of some types of respite care. There is nonetheless still a need for new intervention studies measuring the impact of respite care, especially in-home respite care programs, on the caregiver, the care recipient, and health care resource utilization.
Effectiveness of respite care in supporting informal caregivers of persons with dementia: a systematic review. (Jun 2016, Int J Geriatr Psychiatry) (Follow this link if you have an Athens password). Alternatively contact the UHSM Academy Library for a copy of the article or call 0161 291 5778)
Family caregiving can be both rewarding and fulfilling; however, conflicts can occur in the caregiving relationship, and some family carers may engage in behaviours that could be potentially harmful to the older person for whom them provide care.
Concludes that greater emphasis needs to be placed on adequately supporting family carers so that they can provide safe quality care to their older relatives.
Access the paper by clicking here The prevalence of potentially abusive behaviours in family caregiving: findings from a national survey of family carers of older people. (Age and Ageing, 2016)
Alison Myles, the CEO of Angus Carers Centre, said carers were now performing a “heavier” role as public sector bodies looked for more community based solutions to care.
Access the paper by clicking here Angus carers’ burden increasing as public services ‘shrink’