The development of service user-led recommendations for health and social care services on leaving hospital with memory loss or dementia – the SHARED study. (Health Expect. 2016 Jul 8)

Health and social care services are under strain providing care in the community particularly at hospital discharge. Patient and carer experiences can inform and shape services. The objective of this study was to develop service user-led recommendations enabling smooth transition for people living with memory loss from acute hospital to community. The study’s results show a poor delivery of services caused considerable stress to some study families living with memory loss. Three key recommendations included a need for a written, mutually agreed discharge plan, a named coordinator of services, and improved domiciliary care services. Concludes that vulnerable patients with memory loss find coming out of hospital after an extended period a stressful experience. The SHARED study contributes to understanding the hospital discharge process through the eyes of the patient and carer living with memory loss and has the potential to contribute to more efficient use of resources and to improving health outcomes in communities.

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