Family caregivers experiences of formal care when caring for persons with dementia through the process of the disease. (Scandinavian Journal of Caring Sciences, 2016, 30(3) p. 526-534)

Family caregivers’ experiences of formal care when caring for persons with dementia through the process of the disease is sparsely investigated. The interviewed caregivers experience formal care reactive to their needs and this often promoted unhealthy transitions. Formal care needs to be proactive and deliver available care and support early on in the dementia trajectory. Interventions should focus on facilitating a healthy transition for family caregivers through the trajectory of the dementia disease to ensure their well-being.

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