The main body of literature investigating experiences of caring for a spouse with dementia has focussed on the experiences of receiving a diagnosis and on caring in the early stages of the disorder. This study aimed to gain an in-depth understanding of caring for a spouse at home in rural areas with moderate to severe dementia.
The results revealed four themes; changes in the spousal relationship, the demands of caring, managing the demands and unmet needs. Participants’ accounts illustrated the complexity of caring for someone with moderate to severe dementia and the psychological and practical resources that are required in order to be able to continue to do so.
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