The readability of internet information on lewy body dementia (J Neurol Neurosurg Psychiatry 2017;88:A21)

Lewy body dementia is an increasingly prevalent condition, and is currently estimated to comprise a quarter of all dementias. Patients and carers commonly look to the world wide web as a source of health information, but internet information on Lewy body dementia is difficult to understand. Most was readable only to those with a third level education. This study illustrates that improvements are required to provide patients and carers with clearer online information on Lewy body dementia.

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Caregiver burden, sleep quality, depression, and anxiety in dementia caregivers: a comparison of frontotemporal lobar degeneration, dementia with Lewy bodies, and Alzheimer’s disease. (International Psychogeriatrics, 2017, p. 1-8)

Very few recent studies are available that compare caregiver burden, sleep quality, and stress in caregivers of different types of dementia. We aimed to investigate caregiver burden, sleep quality, and stress in caregivers of patients with frontotemporal lobar degeneration and dementia with Lewy bodies, as compared with caregivers of patients with Alzheimer’s disease.

Caregivers of frontotemporal lobar degeneration and dementia with Lewy bodies patients experienced significantly more burden compared to Alzheimer’s disease caregivers. The frequency and severity of behavioral disturbances in patient and caregiver stress accounted for the increased caregiver burden, which suggests that frontotemporal lobar degeneration and dementia with Lewy bodies caregivers should receive more support than is currently available.

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Individualized support for informal caregivers of people with dementia – effectiveness of the German adaptation of REACH II. (BMC Geriatrics, 2017, 17(1) p. 286)

The results showed a great stabilizing effect of the intervention on caregiver burden, that is, comparing pre- and post-measurements the burden decreased very slightly in the intervention group whereas it increased very strongly in the control group. After a three-month follow-up period this effect decreased from a great to a moderate effect. There were also improvements as a result of the intervention in somatization, health-related psychological quality of life and the reaction of the informal caregivers in response to challenging behaviors of the relative with dementia. Moreover, the frequency of challenging behaviors of the affected person itself was reduced in favor of the intervention.

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Randomized Controlled Trial of Inner Resources Meditation for Family Dementia Caregivers. (Journal of Clinical Psychology, 2017, 73(12) p. 1629-1641)

This randomized controlled trial examined the comparative effectiveness of 2 interventions for improving life satisfaction and reducing stress symptoms among older female dementia family caregivers. The results indicate that mindfulness meditation and mantra has promise as a feasible and effective caregiver intervention for quality of life and physiological responding to stress.

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Balancing competing needs mediates the association of caregiving demand with caregiver role strain and depressive symptoms of dementia caregivers: A cross-sectional study. (Journal of Advanced Nursing; 2017, 73 (12) p. 2962-2972)

This study found that balancing competing needs completely mediated the association of caregiving demand with depressive symptoms and partially mediated the association of caregiving demand with role strain. Assessing caregivers’ self-perceived sense of balance may help to identify caregivers at high risk for role strain and depressive symptoms. Interventions to enhance caregivers’ perceived sense of balance between competing needs may provide a strategy for reducing the negative effects of caregiving.

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An assessment of the association between feeding ability and nutritional status in a population of elderly adults residing in a nursing home (Clinical Nutrition, 2017, Vol. 22 p. 133-134)

The aim of the study was to ascertain whether effective feeding assistance was provided in a population of nursing home residents and to assess the use of validated tools to assess malnutrition risk and feeding ability. A significant number of residents identified at nutritional risk required feeding assistance, which supports the premise that the deterioration of feeding ability leads to a decline in nutritional status. The study advocates the adoption of the use of a single validated nutritional screening tool.

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Staff awareness of food and fluid care needs for older people with dementia in residential care: A qualitative study. (Journal of Clinical Nursing, 2017, vol. 26 p. 5169-5178)

This study was conducted to examine awareness of aged care home staff regarding daily food and fluid care needs of older people with dementia. Staff in a range of positions at one care home were interviewed regarding their perceptions of current and potential food/fluid care practices. Staff were aware of the food and fluid issues experienced by the older people in their care but lacked knowledge of many promising care practices and/or how to implement such practices.

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Survival times with and without tube feeding in patients with dementia or psychiatric diseases in Japan. (Psychogeriatrics, 2017, 17(6) p. 453-459)

This was a retrospective study. Nine psychiatric hospitals in Okayama Prefecture participated. The physicians decided whether to make use of long-term artificial nutrition between January 2012 and December 2014.

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Scaffolding and working together: a qualitative exploration of strategies for everyday life with dementia (Age and Ageing, 2017, Nov. Epub)

Living with dementia has been described as a process of continual change and adjustment, with people with dementia and their families adopting informal strategies to help manage everyday life. As dementia progresses, families increasingly rely on help from the wider community and formal support. Three themes emerged within the scaffolding, characterising the experiences of families living with dementia: doing things together; evolving strategies; and fragility and fear of the future.

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