Category: Dementia – Supporting Carers

This study found that balancing competing needs completely mediated the association of caregiving demand with depressive symptoms and partially mediated the association of caregiving demand with role strain. Assessing caregivers’ self-perceived sense of balance may help to identify caregivers at high risk for role strain and depressive symptoms. Interventions to enhance caregivers’ perceived sense of balance between competing needs may provide a strategy for reducing the negative effects of caregiving.

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Living with dementia has been described as a process of continual change and adjustment, with people with dementia and their families adopting informal strategies to help manage everyday life. As dementia progresses, families increasingly rely on help from the wider community and formal support. Three themes emerged within the scaffolding, characterising the experiences of families living with dementia: doing things together; evolving strategies; and fragility and fear of the future.

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A randomized controlled trial (RCT) was conducted with 81 family caregivers of community-dwelling people with dementia in the Netherlands. The study was designed to shed more light on the effect of online self-management support interventions and to discover if major interventions, consisting of personal email contacts with specialized nurses, videos, and e-bulletins, has more effect than smaller online interventions.

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Both Hospice UK and Dementia UK have launched the ‘Dementia in palliative and end-of-life care Community of Practice’ to bring together practitioners keen, in the spirit of mutual learning, to share knowledge and practice and provide high quality palliative and end-of-life care for families affected by dementia.

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The development of enhanced dementia hospice services has enabled staff to reach out to more people with dementia and work with our partners to deliver a wider service across our community.

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The ability to form secure attachments shapes the experience of feeling safe in distressing situations. Dementia is often described as a distressing situation which activates the attachment system. Consequently, how people with dementia and caregivers attach to one another informs how safety may be experienced in such circumstances.

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Self-efficacy influences one’s behavior and can determine the degree to which one is motivated to take action. The current study explores changes in caregiver self-efficacy pre- and post-participation in a Resources for Enhancing Alzheimer’s Caregiver Health (REACH II) program.

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This study aimes to evaluate the degree of psychological distress in family caregivers of people with dementia. Results show that about half of the caregivers had significant levels of psychological distress. Caregivers also showed high scores in somatization, obsessive-compulsion, interpersonal sensitivity, anxiety, and paranoid ideation.

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The Lancet Commission on Dementia Prevention, Intervention, and Care conducted a comprehensive review of potentially modifiable risk factors for the development of dementia. Prevention measures recommended by the authors include treating hypertension; increasing childhood education; exercise; social engagement; and improving management of hearing loss, depression, and obesity.

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Alzheimer’s disease (AD) affects the global quality of life of persons who suffer from it and their caregivers, because of the behavioral and psychological consequences associated with the pathology and its caring. The Alzheimer Cafe (AC) is one example of approach aimed to help persons and caregivers deal with their disease. Caregivers who joined the AC with their persons with dementia showed to have significantly benefited in the daily care of persons with dementia, in terms of total well-being, vitality, and emotional burden.

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