Category: Uncategorized

The stress of caring for others can put caregivers’ health at risk, yet existing occupational therapy interventions largely focus on providing direct care. Capturing caregivers’ daily lived experiences may yield insights enabling occupational therapists (OTs) to better meet a broader scope of their needs. This phenomenological study aimed to uncover the daily occupations and experiences of spousal caregivers (n = 6). Methods: Data were collected over 4 months using a time-use diary (the Daily Experiences of Pleasure, Productivity, and Restoration Profile), individual interviews, and a focus group. Results: Inductive content analysis resulted in three themes: caregivers felt conflicted by experiences of pleasure and restoration outside of caregiving, occupational experiences revealed changes in daily patterns of life, and past occupational experiences influenced perceptions of caregiving. Conclusion: These findings emphasize the need for OTs to expand their roles with caregivers, supporting their ability to provide care and maintain their health and well-being.

Caregivers’ experiences derived from everyday occupations (Follow this link if you have an Athens password). Alternatively contact the UHSM Academy Library for a copy of the article or call 0161 291 5778)

The clinical and social epidemiology of living with a life-threatening or life-limiting illness, frail ageing, long-term caregiving, and grief and bereavement is well documented in the palliative care, psycho-oncology and psychiatric literature but this investigation asks what interest exists from the mainstream public health sector in these health and illness experiences. This paper reports a content analysis of 7 key British public health journals, 14 major public health textbooks and 3 public health websites employing key word and synonym searches to assess the size and quality of interest in populations related to ageing, dying, caregiving, and grief and bereavement. Compared with other public health issues, such as obesity and tobacco use, for examples, interest in the social experience and epidemiology of end-of-life experiences is extremely low. Reasons for this lack of interest are explored.

The Academy Library does not currently subscribe to the journal that this article appears in, however we can most likely request it from another library. Please contact the UHSM Academy Library for more detail or call 0161 291 5778.

The 3-month-long Family-to-Family intervention (FTF) has been shown to increase empowerment, knowledge, and coping and to reduce distress among caregivers of people with serious mental illness. We sought to determine the influence of FTF on caregivers’ appraisal of their caregiving experience.

The Academy Library does not currently subscribe to the journal that this article appears in, however we can most likely request it from another library. Please contact the UHSM Academy Library for more detail or call 0161 291 5778.

There are more than 1 million people in the UK looking after a family member or friend with cancer, but half the number of these carers do not receive support to care. Providing this care significantly affects cancer carers emotionally, physically, and financially. Community and district nurses have a vital role to play in reaching out to these hidden carers and signposting them to the correct support. This article provides tips on identifying carers, including who they are, the challenges they face, and how health professionals can approach and speak to them. It also provides guidance on signposting carers to national and local sources of support in the UK.

Caring for carers: how community nurses can support carers of people with cancer (Follow this link if you have an Athens password). Alternatively contact the UHSM Academy Library for a copy of the article or call 0161 291 5778)

The purpose of our paper was to explore primary caregivers’ experience of the way public mental health nurses and other mental health clinicians responded to them as primary carers of older adults with mental illness.

Carers of older adults’ satisfaction with public mental health service clinicians: a qualitative study (Follow this link if you have an Athens password). Alternatively contact the UHSM Academy Library for a copy of the article or call 0161 291 5778)

The objective of this study is to test the validity of an accreditation programme for memory services in the UK by investigating whether different levels of accreditation status (excellent compared with accredited) are reflected in patients’ and carers’ reported satisfaction.

Patients’ and carers’ experiences of UK memory services (Follow this link if you have an Athens password). Alternatively contact the UHSM Academy Library for a copy of the article or call 0161 291 5778)

Family carers of people with dementia often experience difficulty in accessing information, services and adequate support. Admiral Nurses, registered nurses specialising in dementia, provide holistic and person-centred support to families living with dementia. This study assessed the effectiveness of the Admiral Nurses’ approach from the perspective of family carers who had accessed their service.

 

The Academy Library does not currently subscribe to the journal that this article appears in, however we can most likely request it from another library. Please contact the UHSM Academy Library for more detail or call 0161 291 5778.

To report a multi-phase modified Delphi study conducted with carers and professionals to identify the priority areas for inclusion in an alert screening tool for carers providing support to someone dying at home.

Effectiveness of a psychoeducational programme for informal caregivers of older adults (Follow this link if you have an Athens password). Alternatively contact the UHSM Academy Library for a copy of the article or call 0161 291 5778)

Family and unpaid caregivers commonly help older adults who are at high risk for poorly coordinated care. This paper will examine how caregivers’ involvement in older adults’ health care activities relates to caregiving responsibilities, supportive services use, and caregiving-related effects.

A National profile of family and unpaid caregivers who assist older adults with health care activities (Follow this link if you have an Athens password). Alternatively contact the UHSM Academy Library for a copy of the article or call 0161 291 5778)

We aimed to obtain a better understanding of how different aspects of patient functioning affect key cost and caregiver outcomes in Alzheimer’s disease (AD).

The Academy Library does not currently subscribe to the journal that this article appears in, however we can most likely request it from another library. Please contact the UHSM Academy Library for more detail or call 0161 291 5778.