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Extensive evidence shows that well over 50% of people prefer to be cared for and to die at home provided circumstances allow choice. Despite best efforts and policies, one-third or less of all deaths take place at home in many countries of the world.
The Academy Library does not currently subscribe to the journal that this article appears in, however we can most likely request it from another library. Please contact the UHSM Academy Library for more detail or call 0161 291 5778.
Recent national reports highlight the dramatically rising costs of cancer care and its impact on financial hardship among survivors. Comparatively little attention, however, has been paid to the contributions of family and friends in unpaid caregiving roles -specifically, the impact of caregiving on caregivers jobs and work life. Methods: Using data collected in the 2012 LIVESTRONG Survey of People Affected by Cancer, we examined the prevalence of cancer survivors reporting that they had a friend or family member providing care to them during or after cancer treatment. Then, among those reporting they had a caregiver employed at that time, we used logistic regression to examine caregiver work modifications (i.e., paid time, unpaid time off, changing hours or duties, or making a change in employment status. All models controlled for survivor age at diagnosis, sex, race/ethnicity, income, education and employment status as potential predictors.
The Academy Library does not currently subscribe to the journal that this article appears in, however we can most likely request it from another library. Please contact the UHSM Academy Library for more detail or call 0161 291 5778.
Dementia draws on a variety of public and private resources. There is increasing pressure to define the cost components in this area to improve resource allocation and accountability. The aim of this study was to characterize frailty in a group of cognitively impaired community-dwelling elders and evaluate its relationship with cost and resource utilization.
Frailty: a costly phenomenon in caring for elders with cognitive impairment (Follow this link if you have an Athens password). Alternatively contact the UHSM Academy Library for a copy of the article or call 0161 291 5778)
Identifying factors associated with lower dementia care costs is essential. We examined whether two caregiver factors were associated with lower costs of informal care.
Closer caregiver and care-recipient relationships predict lower informal costs of dementia care: the cache county dementia progression study (Follow this link if you have an Athens password). Alternatively contact the UHSM Academy Library for a copy of the article or call 0161 291 5778)
Due to the high prevalence of dementia, health care needs are increasing beyond existing formal resources.
The Academy Library does not currently subscribe to the journal that this article appears in, however we can most likely request it from another library. Please contact the UHSM Academy Library for more detail or call 0161 291 5778.
Childhood disability is relatively common, estimated to affect around 7% of children in the UK. Nevertheless, caring for a child with medical, social and/or educational needs is not something parents expect or plan for. Parent carers often describe this unanticipated role as ‘an ongoing battle’ to access information and services. The aim of this article is to raise awareness of resources that can support parent carers and their families.
From the beginning parent carers need accurate information about their child’s health and medical condition – what it is and what it means – and ongoing support in developing their understanding, so they can make informed decisions about treatments and therapies. Given that children have widely varying health conditions, and that parent carers and their families will also have a range of different needs and abilities, it is not possible to provide a comprehensive practical guide for professionals that will be relevant to, and meet the needs of, all the families they will encounter. Nevertheless we seek to offer clinicians some useful reflections on how they can support parent carers.
Resources for parents raising a disabled child in the UK (Follow this link if you have an Athens password). Alternatively contact the UHSM Academy Library for a copy of the article or call 0161 291 5778)
There are 835,000 people in the UK who have dementia at an annual cost to the UK economy of £26 billion. Most people with dementia live in the community with one in three living alone at home with much of the care being met by unpaid carers. Seventy percent of care home residents have dementia….Specialist care has a critical role in supporting primary care’s role in management. Specialist care includes old age psychiatry, geriatric medicine and neurology. In addition non-medical specialties have a significant role. These include community psychiatric nurses, occupational therapists, psychologists and pharmacists. Physiotherapy and speech and language therapists can be a part of management and assessment. In this chapter, we will describe the role of specialist care in dementia. There is no one model that fits the care pathways in dementia, and some of the collaborative models will be described.
The Academy Library does not have this book that this chapter appears in, however we can most likely request it from another library. Please contact the UHSM Academy Library for more detail or call 0161 291 5778.
The aim of this study was to discover and describe how patients, carers and case management nurses define safety and compare it to the traditional risk reduction and harm avoidance definition of safety.
Alternative perspectives of safety in home delivered health care: a sequential exploratory mixed method study (Follow this link if you have an Athens password). Alternatively contact the UHSM Academy Library for a copy of the article or call 0161 291 5778)
Across the UK, 1.2 million people who provide unpaid care are poverty-stricken, according to the report from the New Policy Institute (NPI).
Access the paper by clicking here 1.2 million unpaid carers living in poverty, says report
Using feminist political economy, this article argues that companions hired privately by families to care for residents in publicly funded long-term care facilities (nursing homes) are a liminal and invisible labour force. A care gap, created by public sector austerity, has resulted in insufficient staff to meet residents’ health and social care needs. Families pay to fill this care gap in public funding with companion care, which limits demands on the state to collectively bear the costs of care for older adults. We assess companions’ work in light of Vosko’s (2015) and Rodgers and Rodgers’ (1989) dimensions for precariousness. We discuss how to classify paid care work that overlaps with paid formal and unpaid informal care. Our findings illuminate how companions’ labour is simultaneously autonomous and precarious; it fills a care gap and creates one, and can be relational compared with staffs’ task-oriented work.
The Academy Library does not currently subscribe to the journal that this article appears in, however we can most likely request it from another library. Please contact the UHSM Academy Library for more detail or call 0161 291 5778.