Everyone’s experience with an illness, disease, or diagnosis is unique. But when patients look to their caregivers for information and guidance, the common reply, “Well, it’s different for everyone,” can be disheartening. In a personal and moving new post to the IHI blog, Northeastern University senior and IHI Project Assistant Lilly Stairs tells her story of seeking help from the health care system while battling multiple autoimmune diseases.
She points out that although clinicians can’t have all the answers, but she asks them to provide some. “Repeatedly hearing ‘It’s different for everyone,’” she writes, “makes me feel anxious, uncertain, and ultimately frustrated.” She urges doctors to think deeply about how their words affect their patients, and argues that they should share the information that is available – from other patients, colleagues, credible information on the Internet, and the growing number of databases that collect patient-reported data.