Category: Dementia

Why it’s important to review the care of people with dementia: What the data and people’s experiences tell us about social care reviews, reassessments and their outcomes for people with dementia

Healthwatch, July 2019

This Healthwatch report summarises data and people’s experiences about social care reviews, reassessments and their outcomes for people with dementia. On the basis of analysis of data from 97 local councils, the report finds people are not getting what they are entitled to.

Click here to view the full report.

Hidden no more: dementia and disability

All-Party Parliamentary Group on Dementia, June 2019

All-Party Parliamentary Group on Dementia report that identifies that according to domestic law and international convention, dementia is a disability. Thousands of people who responded to an All-Party Parliamentary Group (APPG) inquiry agreed that they see dementia as a disability. But they told the APPG that society is lagging behind and failing to uphold the legal rights of people with dementia. The evidence reveals that, across the country, people with dementia are not having their disability rights upheld. This report seeks to highlight the human impact that this has on people living with dementia. It focuses on themes of equality, non-discrimination, participation and inclusion.

Click here to view the full report.

Limbic-predominant age-related TDP-43 encephalopathy (LATE): consensus working group report

Brain, awz099, https://doi.org/10.1093/brain/awz099
This study describes a recently recognized disease entity, limbic-predominant age-related TDP-43 encephalopathy (LATE). LATE shares similar symptoms to Alzheimer’s disease, but it is a distinct disease linked to different brain proteins.  Interventions designed for Alzheimer’s disease will therefore be ineffective for LATE.  Developing an understanding of LATE will hopefully lead to new avenues of research into dementia treatments and care.
Click here to access the paper.

Exploring dementia and agitation: how public policy needs to respond

International Longevity Centre UK, March 2019
The MARQUE (Managing Agitation and Raising Quality of Life in Dementia) project is the largest ever study involving people living in care homes.  The study examined critical issues for people living with dementia and their paid and unpaid carers, particularly around the challenges of agitation. This report summarises a number of key findings from the study and makes recommendations for how public policy should respond.
Click here to view the full report.