Learning from Lives and Deaths

People with a learning disability and autistic people (LeDeR)

Kings College London

The national Learning from Lives and Deaths – people with a learning disability and autistic people (LeDeR) report (2023) has been re-published in January 2026.

The Learning from Lives and Deaths – people with a learning disability and autistic people (LeDeR) programme, funded by NHS England and NHS Improvement, was established in 2017 to improve healthcare for people with a learning disability and autistic people. LeDeR aims to:

  • Improve care for people with a learning disability and autistic people.
  • Reduce health inequalities for people with a learning disability and autistic people.
  • Prevent people with a learning disability and autistic people from early deaths.

Access the report here: Learning from Lives and Deaths – people with a learning disability and autistic people (LeDeR) | King’s College London

A Qualitative Study on the Experiences of Adult Females with Late Diagnosis of ASD and ADHD in the UK

Wills V, Chakraborty R. 2026 Jan 14;14(2):209. doi: 10.3390/healthcare14020209. PMID: 41595345; PMCID: PMC12840745

Adult females with Autism Spectrum Disorder (ASD) and Attention Deficit Hyperactivity Disorder (ADHD) are frequently underdiagnosed due to gender bias, overlapping symptoms, and limited awareness among healthcare professionals. The scarcity of research on this subject—particularly in the UK context—underscores the need for further investigation. Accordingly, the aim of this study was to explore the lived experiences of adult females receiving a late diagnosis of ASD and/or ADHD and to identify key barriers within the UK diagnostic pathway.

Read the full article here: A Qualitative Study on the Experiences of Adult Females with Late Diagnosis of ASD and ADHD in the UK – PubMed Freely accessible