Developing palliative and end-of-life care research partnerships in the North East and North Cumbria: A report on the first year of the RIPEN network

A new research article from the NIHR Health and Social Care Delivery Research programme reports on the first year of the RIPEN network in the North East and North Cumbria. The project aimed to build stronger palliative and end-of-life care research collaboration across health, social care and hospice settings.

The work brought together patient and public partners, NHS trusts, universities and local organisations to create a research culture that supports inquiry, sharing of knowledge and future funding success. Activities included seminars, training events, collaborative workshops and support for early career researchers.

The evaluation found that these efforts helped establish new connections, shaped research proposals and built momentum for continued development in this important area of care. This collaborative approach has created a strong foundation for ongoing research that aims to improve quality of life and experiences at the end of life for people and families.

Read the full article here: Developing palliative and end-of-life care research partnerships in the North East and North Cumbria: A report on the first year of the RIPEN network | NIHR Journals Library

Dementia Bulletin

With thanks to our colleagues from Mersey Care NHS Foundation Trust please find the latest bulletin attached. Some articles are freely accessible, others require an Open Athens account.

In this issue:

  • Study finds 10% of over-70s in UK could have Alzheimer’s-like changes in brain
  • Teaming up with British Deaf Association to support Deaf people affected by dementia
  • 6 Symptoms of Depression That May Raise Your Alzheimer’s Risk
  • Your Driving Habits Could Predict Cognitive Decline

For support accessing any of the articles, please contact academic.library@lscft.nhs.uk.

Dementia Bulletin

With thanks to our colleagues from Mersey Care NHS Foundation Trust please find the latest bulletin attached. Some articles are freely accessible, others require an Open Athens account.

In this issue:

  • Dementia risk for people who quit smoking in middle age ‘same as someone who never smoked’
  • Improved safeguarding and protections for vulnerable people
  • Advances in science set to transform treatments for people living with dementia
  • Five benefits of getting a diagnosis for dementia – what are they?

For support accessing any of the articles, please contact academic.library@lscft.nhs.uk.

Dementia Bulletin

With thanks to our colleagues from Mersey Care NHS Foundation Trust please find the latest bulletin attached. Some articles are freely accessible, others require an Open Athens account.

In this issue:

  • Air pollution raises risk of dementia, say Cambridge scientists
  • AI performs as well as traditional methods at identifying Alzheimer’s risk genes
  • Starting conversations about dementia
  • Pain Reliever Tied to Higher Dementia Risk
  • Peer support groups for younger people launch in Sefton and Liverpool

For support accessing any of the articles, please contact academic.library@lscft.nhs.uk.

Listening to Lived Experiences of Dementia

A new report from the Alzheimer’s Society has captured the voices of people affected by dementia across England, Wales and Northern Ireland.

The Lived Experiences of Dementia 2025 survey highlights the reality of life with dementia today, from the challenges of getting a timely diagnosis to the emotional and practical toll on families. The findings reveal a system under pressure where too many people still struggle to access the care and understanding they deserve.

By listening to lived experience, the report calls for greater awareness, stronger community support and more compassionate, joined up services.

You can read the full report here: Survey report: Lived experiences of dementia 2025 | Alzheimer’s Society

Dementia Bulletin

The latest dementia bulletin from Mersey Care Evidence and Library Service has now been published.

In this issue:

  • Evaluating care pathways in Alzheimer’s disease: a qualitative interview study with GPs in England
  • Dementia-related volumetric assessments in neuroradiology reports: a natural language processing-based study
  • The State of Health and Care of Older People in England 2025
  • New Board Game Helps Children Understand Dementia
  • Young Onset Dementia Group, Liverpool

If you are unable to access any of the included items please contact academic.library@lscft.nhs.uk.

Dementia Bulletin

The latest dementia bulletin from Mersey Care Evidence and Library Service has now been published at https://www.evidentlybetter.org/dementia/2025/09/3-september-2025/

In this issue:

  • Effects of a person-centered music-based intervention in the rehabilitation of older adults with mild to moderate dementia
  • The iADRS as an integrated measure of cognition and function: Psychometric evidence from recent clinical trials in early symptomatic Alzheimer’s disease
  • Co‐pathology in Alzheimer’s disease and Lewy body disease and its association with neuropsychiatric symptoms
  • Alzheimer’s Society launches bold new brand advertising campaign, ‘A Personal Appeal’
  • UK trial launches to transform Alzheimer’s diagnosis with simple blood test

If you are unable to access any of the included items please contact academic.library@lscft.nhs.uk.

Dementia Bulletin

The latest dementia bulletin from Mersey Care Evidence and Library Service has now been published at https://www.evidentlybetter.org/dementia/2025/09/3-september-2025/

In this issue:

  • NHS supporting record numbers of people living with dementia
  • How AI is accelerating the race to understand dementia
  • Self-Reported Hearing Aid Use and Risk of Incident Dementia
  • World Alzheimer’s Report 2025 launch

If you are unable to access any of the included items please contact academic.library@lscft.nhs.uk.

Creative Arts for Dementia – Insights from NIHR ARCs Webinar

A recent NIHR ARCs webinar on 9 July 2025 highlighted the impact of creative arts on dementia care. Over three concise 10-minute talks, researchers covered music therapy, singing and dancing interventions, and how creative arts can involve people living with dementia in research. The event was chaired by Dr Stephen Lim (ARC Wessex) and featured Dr Ming-Hung Hsu (East of England), Dr Megan Polden (North West Coast), and Prof Linda Clare (South West Peninsula)

Read more: NIHR ARCs national webinar (#ARCseminar): Creative arts for dementia | NIHR ARC Wessex